Reinert, Christiane and Rathberger, Katharina and Klinkhammer-Schalke, Monika and Koelbl, Oliver and Proescholdt, Martin and Riemenschneider, Markus J. and Schuierer, Gerhard and Hutterer, Markus and Gerken, Michael and Hau, Peter (2018) Information needs and requirements in patients with brain tumours and their relatives. JOURNAL OF NEURO-ONCOLOGY, 138 (2). pp. 407-415. ISSN 0167-594X, 1573-7373
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Patients with brain tumours face a number of medical and social challenges. Previous studies have shown that these patients and their relatives need a high level of patient-oriented information and counselling. However, these needs are often underestimated. In this single-centre cross-sectional study, we evaluated, for the first time, the information needs of patients with brain tumours and their relatives depending on diagnosis, age and level of education. The participants were interviewed using pre-specified questionnaires. Answers were evaluated descriptively using standard statistical methods. A total of 888 questionnaires were sent out. The return rate was 50.7%. The majority of patients (nP = 103; 59.9%) and a higher proportion of relatives (nR = 103; 72.5%; p = 0.019) wished to receive a maximum of information. The majority (79.7% of patients; 83.1% of relatives) also stated that they preferred a personal, face-to-face meeting as primary source of information. The need for information increased with education (p = 0.015), and decreased with tumour grade (p = 0.025) and age (p = 0.118). Our data indicate that patients with brain tumours and their relatives have high information needs throughout their disease and continuously require information and counselling. Optimal provision of information is based on personal preferences, which needs to be evaluated appropriately. Patient-oriented information and counselling are parts of a successful communication strategy that can improve cancer care significantly.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | DECISION-MAKING; CANCER-PATIENTS; BREAST-CANCER; PREFERENCES; ONCOLOGY; SUPPORT; CARE; Brain tumour; Information need; Patient; Relative; Patient-oriented information |
| Subjects: | 600 Technology > 610 Medical sciences Medicine |
| Divisions: | Medicine > Lehrstuhl für Neurochirurgie Medicine > Lehrstuhl für Neurologie Medicine > Abteilung für Neuropathologie Medicine > Lehrstuhl für Strahlentherapie Medicine > Zentren des Universitätsklinikums Regensburg > Tumorzentrum e.V. |
| Depositing User: | Dr. Gernot Deinzer |
| Date Deposited: | 10 Mar 2020 13:52 |
| Last Modified: | 10 Mar 2020 13:53 |
| URI: | https://pred.uni-regensburg.de/id/eprint/14543 |
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