Dodoo-Schittko, Frank and Brandstetter, Susanne and Brandl, Magdalena and Blecha, Sebastian and Quintel, Michael and Weber-Carstens, Steffen and Kluge, Stefan and Kirschning, Thomas and Muders, Thomas and Bercker, Sven and Ellger, Bjoern and Arndt, Christian and Meybohm, Patrick and Adamzik, Michael and Goldmann, Anton and Karagiannidis, Christian and Bein, Thomas and Apfelbacher, Christian (2018) German-wide prospective DACAPO cohort of survivors of the acute respiratory distress syndrome (ARDS): a cohort profile. BMJ OPEN, 8 (4): e019342. ISSN 2044-6055,
Full text not available from this repository. (Request a copy)Abstract
Purpose While most research focuses on the association between medical characteristics and residual morbidity of survivors of the acute respiratory distress syndrome (ARDS), little is known about the relation between potentially modifiable intensive care unit (ICU) features and the course of health-related quality of life (HRQoL). Accordingly, the DACAPO study was set up to elucidate the influence of quality of intensive care on HRQoL and return to work (RtW) in survivors of ARDS. The continued follow-up of these former ICU patients leads to the establishment of the DACAPO (survivor) cohort. Participants Sixty-one ICUs all over Germany recruited patients with ARDS between September 2014 and April 2016. Inclusion criteria were: (1) age older than 18 years and (2) ARDS diagnosis according to the 'Berlin definition'. No further inclusion or exclusion criteria were applied. 1225 patients with ARDS could be included in the DACAPO ICU sample. Subsequently, the 876 survivors at ICU discharge form the actual DACAPO cohort. Findings to date The recruitment of the participants of the DACAPO cohort and the baseline data collection has been completed. The care-related data of the DACAPO cohort reveal a high proportion of adverse events (in particular, hypoglycaemia and reintubation). However, evidence-based supportive measures were applied frequently. Future plans Three months, 6 months and 1 year after ICU admission a follow-up assessment is conducted. The instruments of the follow-up questionnaires comprise the domains: (A) HRQoL, (B) RtW, (C) general disability, (D) psychiatric symptoms and (E) social support. Additionally, an annual follow-up of the DACAPO cohort focusing on HRQoL, psychiatric symptoms and healthcare utilisation will be conducted. Furthermore, several add-on projects affecting medical issues are envisaged.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | QUALITY-OF-LIFE; PATIENT HEALTH QUESTIONNAIRE; CARE; VALIDITY; DETERMINANTS; METAANALYSIS; MULTICENTER; VALIDATION; MORTALITY; RETURN; |
| Subjects: | 600 Technology > 610 Medical sciences Medicine |
| Divisions: | Medicine > Institut für Epidemiologie und Präventivmedizin |
| Depositing User: | Dr. Gernot Deinzer |
| Date Deposited: | 05 Mar 2020 08:54 |
| Last Modified: | 05 Mar 2020 08:54 |
| URI: | https://pred.uni-regensburg.de/id/eprint/14805 |
Actions (login required)
 |
View Item |
