Sexual Function and Quality of Life in Adult Male Individuals with Exstrophy-Epispadias Complex-a Survey of the German CURE-Network

Traceviciute, Justina and Zwink, Nadine and Jenetzky, Ekkehart and Reutter, Heiko and Hirsch, Karin and Stein, Raimund and Roesch, Wolfgang H. and Ebert, Anne-Karoline (2018) Sexual Function and Quality of Life in Adult Male Individuals with Exstrophy-Epispadias Complex-a Survey of the German CURE-Network. UROLOGY, 112. pp. 215-221. ISSN 0090-4295, 1527-9995

Full text not available from this repository. (Request a copy)

Abstract

OBJECTIVE To investigate sexual function and quality of life (QoL) in adult male individuals with exstrophyepispadias complex (EEC). Data from the German Network for Congenital Urorectal Malformations (CURE-Net) were used. PATIENTS AND METHODS Fifty-one male participants (>= 18 years) recruited by CURE-Net between 2009 and 2012 were recontacted per mail and asked to fill out 4 questionnaires including International Index of Erectile Function (IIEF-5), Cologne Assessment of Erectile Dysfunction (KEED), the Short-Form 36 (SF-36), and one self-designed questionnaire about their medical history, current health status, and sexual experience. The SF-36 results were compared with general German population. RESULTS Nineteen male participants (37%) completed all questionnaires (median age 26 years, 84% classical bladder exstrophy). The majority (68%) was reconstructed in a staged or single-staged approach; further 32% had a primary urinary diversion. Seventy-four percent of the participants reported a certain degree of urinary incontinence. Mean IIEF-15 results showed mild to moderate or moderate impairment in all domains. The SF-36 results revealed no difference in the German population. Subgroup analysis showed statistically significant lower results in certain SF-36 domains with regard to incontinence, dissatisfaction with genital appearance, and antihypertensive drug intake. CONCLUSION Although there is no difference in overall QoL comparing male individuals with EEC to the general German population, incontinence, dissatisfaction with genital appearance, and taking antihypertensive medication seem to have a considerable impact on QoL. Furthermore, mild to moderate erectile dysfunction and moderate intercourse satisfaction were confirmed, suggesting the need for further improvement in care for adult male individuals with EEC. (c) 2017 Elsevier Inc.

Item Type: Article
Uncontrolled Keywords: BLADDER EXSTROPHY; ERECTILE DYSFUNCTION; FOLLOW-UP; RECONSTRUCTION; CHILDHOOD; HEALTH;
Subjects: 600 Technology > 610 Medical sciences Medicine
Divisions: Medicine > Lehrstuhl für Urologie
Depositing User: Dr. Gernot Deinzer
Date Deposited: 19 Mar 2020 06:51
Last Modified: 19 Mar 2020 06:51
URI: https://pred.uni-regensburg.de/id/eprint/15097

Actions (login required)

View Item View Item