Phantom Limb Pain in Daily Practice - Still a Lot of Work to Do!

Kern, Uwe and Busch, Volker and Mueller, Ruben and Kohl, Matthias and Birklein, Frank (2012) Phantom Limb Pain in Daily Practice - Still a Lot of Work to Do! PAIN MEDICINE, 13 (12). pp. 1611-1626. ISSN 1526-2375, 1526-4637

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Abstract

Objectives. Effective treatment of phantom limb pain (PLP, pain felt in the part of the body of an amputated limb) is still difficult to achieve, and improved treatment is needed. It is therefore of paramount interest to understand the current practice of PLP therapy outside pain centers. Design. As a part of a nationwide survey, 537 amputees were asked 11 questions related to their treatment experiences and the pain relief. Furthermore, the patients' opinion about the quality of medical care was also asked. Results. Five hundred thirty-seven out of 1088 amputees returned the questionnaire (49.4%). Four hundred (74.5%) suffered from PLP. The patients rated their caregivers' knowledge about PLP lower than their own. Many (41.6%) of PLP patients had never been informed about the possibility of occurrence and mechanisms of PLP. The vast majority of the PLP patients did not try any treatment. Among those treated, more than 30% consulted more than three physicians for beneficial treatment. A >50% pain reduction was achieved in only 12.7% of PLP patients. The most successful treatments were opioids (67.4%) and anticonvulsants (51.7%). Surgery was performed in 46.4% of all PLP patients and in 29.7% due to a clinically suspected neuroma. After surgery, pain was worse or unchanged in 50% and improved in 41.6%, and 7.4% were pain-free. Conclusions. Our results suggest that there are primary needs for better information about PLP pathophysiology and treatment not only for patients but also for caregivers. Limited therapeutic success reveals a further need for increased research in PLP management.

Item Type: Article
Uncontrolled Keywords: TOXIN TYPE-A; CORTICAL REORGANIZATION; POSTAMPUTATION PAIN; BOTULINUM-TOXIN; DOUBLE-BLIND; STUMP PAIN; AMPUTATION; AMPUTEES; PLACEBO; SENSATION; Phantom Limb; Pain; Amputees; Therapy; Opioid; Health Survey
Subjects: 600 Technology > 610 Medical sciences Medicine
Divisions: Medicine > Lehrstuhl für Neurologie
Depositing User: Dr. Gernot Deinzer
Date Deposited: 04 May 2020 05:09
Last Modified: 04 May 2020 05:09
URI: https://pred.uni-regensburg.de/id/eprint/17657

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