Gencer, Deniz and Tauchert, Felix and Keilhauer, Nina and Al-Batran, Salah-Eddin and Stahl, Michael and Oskay-Oezcelik, Guelten and Hipp, Matthias and Leibbrand, Birgit and Prasnikar, Nicole and Trarbach, Tanja and Stoll, Christoph and van Kampen, Michael and Hochhaus, Andreas and Lorenzen, Sylvie and Hofheinz, Ralf-Dieter (2011) Cancer Patients and the Internet: A Survey of the 'Quality of Life' Working Groups of the Arbeitsgemeinschaft fur Internistische Onkologie and the Nord-Ostdeutsche Gesellschaft fur Gynakologische Onkologie. ONKOLOGIE, 34 (8-9). pp. 435-440. ISSN 0378-584X,
Full text not available from this repository. (Request a copy)Abstract
Background: Patient-reported outcomes, such as quality of life (QoL) assessment, are becoming more important as end-point in clinical trials and for decision making regarding new anticancer product approvals. Nevertheless, numerous obstacles exist regarding the implementation of QoL assessment in the daily practice of medical oncologists. Regular, computerized or internet home-based QoL assessments could be a step forward. Methods: Using a 15-item paper questionnaire, we conducted a survey among 1580 cancer patients regarding their willingness to use internet QoL assessment, and collected personal data and information about current disease and performance status. Results: Younger patients (i.e. <= 65 years) significantly more often had internet access (78% versus 36%; chi(2) test, p < 0.001). Moreover, the availability of internet access correlated with higher education levels. 55% of all polled patients are willing to use an internet-based QoL assessment tool, regardless of the type of internet access, whereas almost two-thirds (n = 600; 65%) of patients with their own internet access would be willing to use it for providing statements about QoL. Of these, especially younger patients in good health status with higher education degrees indicated their willingness to use such tools. Conclusion: These data may serve as a basis for identifying patient groups willing to participate in pilot projects to evaluate the implementation of internet-based regular assessment of QoL in cancer.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | QUESTIONNAIRES; SATISFACTION; INTERVIEW; BEHAVIOR; PAPER; Internet; Patient-reported outcomes; Quality of life |
| Subjects: | 600 Technology > 610 Medical sciences Medicine |
| Divisions: | Medicine > Lehrstuhl für Strahlentherapie |
| Depositing User: | Dr. Gernot Deinzer |
| Date Deposited: | 02 Jun 2020 09:01 |
| Last Modified: | 02 Jun 2020 09:01 |
| URI: | https://pred.uni-regensburg.de/id/eprint/20314 |
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