Gross-Hemmi, Mirja H. and Post, Marcel W. M. and Bienert, Stefanie and Chamberlain, Jonviea D. and Hug, Kerstin and Jordan, Xavier and Scheel-Sailer, Anke and Weiss, Annette and Brinkhof, Martin W. G. and Reynard, Fabienne and Baumberger, Michael and Gmunder, Hans Peter and Curt, Armin and Schubert, Martin and Hund-Georgiadis, Margret and Joggi, Daniel and Landolt, Hardy and Munzel, Nadja and Brach, Mirjam and Stucki, Gerold and Fekete, Christine (2019) Participation in People Living With Spinal Cord Injury in Switzerland: Degree and Associated Factors. ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION, 100 (10). pp. 1894-1906. ISSN 0003-9993, 1532-821X
Full text not available from this repository. (Request a copy)Abstract
Objective: To describe different domains of participation such as productive, leisure and social activities and describe sociodemographic and spinal cord injury (SCI)-related characteristics that are associated with participation in these domains in a large sample of community-dwelling individuals with SCI in Switzerland. Design: Cross-sectional population-based survey within the Swiss Spinal Cord Injury Cohort Study. Participation in major life domains was measured by the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation). Univariable unconditional analysis and unbiased recursive partitioning were used to identify the predominant associations of sociodemographic and SCI-related characteristics with multiple dimensions of participation. Setting: Community. Participants: Swiss residents aged 16 years or older and living with traumatic or nontraumatic SCI (N=1549). Interventions: Not applicable. Main Outcome Measure: The USER-Participation, a 32-item self-report questionnaire with 3 scales (Frequency, Restrictions, and Satisfaction) to assess key domains of participation (productive, leisure, social). Results: Frequency (median 34.5 out of 100) in productive, outdoor leisure, and social activities was reduced with distinctive perceived restrictions in work and education, sports, and partner relationships. Domestic leisure activities (65.4%) and maintaining social relationships (76.1%) were those activities most often performed and with least perceived restrictions. Participants were generally satisfied with their current daily life activities. Lower scores across all participation scales were associated with more severe SCI, higher age, being female, not having a partner, and lower level of education. Conclusions: This study provides a thorough analysis of participation in major life domains of individuals with SCI in Switzerland. Different risk groups for reduced levels in participation in productive, leisure, and social activities were identified. This population-based evidence is instrumental to the better targeting of rehabilitation and policy interventions that aim to improve community participation. (C) 2019 by the American Congress of Rehabilitation Medicine
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | QUALITY-OF-LIFE; UTRECHT SCALE; SOCIAL-PARTICIPATION; REHABILITATION-PARTICIPATION; ACTIVITIES SCREENER; ICF MEASURE; DISABILITY; OUTCOMES; HEALTH; AGE; |
| Subjects: | 600 Technology > 610 Medical sciences Medicine |
| Divisions: | Medicine > Institut für Epidemiologie und Präventivmedizin |
| Depositing User: | Dr. Gernot Deinzer |
| Date Deposited: | 06 Mar 2020 13:43 |
| Last Modified: | 06 Mar 2020 13:43 |
| URI: | https://pred.uni-regensburg.de/id/eprint/26107 |
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