NAM-help or burden? Intercultural evaluation of parental stress caused by nasoalveolar molding: a retrospective multi-center study

Roth, Maximilian and Lonic, Daniel and Grill, Florian D. and Ritschl, Lucas M. and Loeffelbein, Denys J. and Wolff, Klaus-Dietrich and Niu, Lien-Shin and Pai, Betty Chien-Jung and Prantl, Lukas and Kehrer, Andreas and Heidekruger, Paul I. and Rau, Andrea and Lo, Lun-Jou (2021) NAM-help or burden? Intercultural evaluation of parental stress caused by nasoalveolar molding: a retrospective multi-center study. CLINICAL ORAL INVESTIGATIONS, 25 (9). pp. 5421-5430. ISSN 1432-6981, 1436-3771

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Abstract

Objectives Nasoalveolar molding (NAM) was developed to facilitate easier treatment and better outcomes for cleft lip and palate (CLP) patients. The aim of this study was to investigate the parental burden and possible intercultural differences of this treatment modality, which is often argued to burden parents to an extraordinary amount. Materials and methods Standardized questionnaires (available in English, Mandarin, and German) with 15 non-specific and 14 NAM-specific items to be retrospectively answered by Likert scales by parents of unilateral CLP patients with completed NAM treatment. Results The parents of 117 patients from two treatment centers in Taiwan and Germany were included. A very high level of overall satisfaction was found in both countries with significant intercultural differences in prenatal parent information, feeding problems, dealing with 3rd party's perception, and experienced personal effort. Conclusion NAM is an effective treatment tool for children's CLP deformities and their caregivers in overcoming the feeling of helplessness. Intercultural differences may be due to infrastructural reasons, cultural attitudes and habits, or different public medical education.

Item Type: Article
Uncontrolled Keywords: ; Nasoalveolar molding; Intercultural evaluation; Parental stress; Burden; Cleft lip palate; Questionnaire
Subjects: 600 Technology > 610 Medical sciences Medicine
Divisions: Medicine > Lehrstuhl für Mund-, Kiefer- und Gesichtschirurgie
Medicine > Zentren des Universitätsklinikums Regensburg > Zentrum für Plastische-, Hand- und Wiederherstellungschirurgie
Depositing User: Dr. Gernot Deinzer
Date Deposited: 14 Sep 2022 09:28
Last Modified: 14 Sep 2022 09:28
URI: https://pred.uni-regensburg.de/id/eprint/47446

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