Mekelenkamp, Hilda and Schroder, Teija and Trigoso, Eugenia and Hutt, Daphna and Galimard, Jacques-Emmanuel and Kozijn, Anne and Dalissier, Arnaud and Gjergji, Marjola and Liptrott, Sarah and Kenyon, Michelle and Murray, John and Corbacioglu, Selim and Bader, Peter (2021) Specialized Pediatric Palliative Care Services in Pediatric Hematopoietic Stem Cell Transplant Centers. CHILDREN-BASEL, 8 (8): 615. ISSN , 2227-9067
Full text not available from this repository. (Request a copy)Abstract
Hematopoietic stem cell transplantation (HSCT) is widely used in pediatric patients as a successful curative therapy for life-threatening conditions. The treatment is intensive, with risks of serious complications and lethal outcomes. This study aimed to provide insight into current data on the place and cause of death of transplanted children, the available specialized pediatric palliative care services (SPPCS), and what services HSCT professionals feel the SPPCS team should provide. First, a retrospective database analysis on the place and cause of death of transplanted pediatric HSCT patients was performed. Second, a survey was performed addressing the availability of and views on SPPCS among HSCT professionals. Database analysis included 233 patients of whom the majority died in-hospital: 38% in the pediatric intensive care unit, 20% in HSCT units, 17% in other hospitals, and 14% at home or in a hospice (11% unknown). For the survey, 98 HSCT professionals from 54 centers participated. Nearly all professionals indicated that HSCT patients should have access to SPPCS, especially for pain management, but less than half routinely referred to this service at an early stage. We, therefore, advise HSCT teams to integrate advance care planning for pediatric HSCT patients actively, ideally from diagnosis, to ensure timely SPPCS involvement and maximize end-of-life preparation.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | COMPLEX CHRONIC CONDITIONS; CHILDREN; LIFE; END; PERSPECTIVES; PATTERNS; CANCER; PLACE; DEATH; hematopoietic stem cell transplantation; palliative care; palliative care services; pediatric |
| Subjects: | 600 Technology > 610 Medical sciences Medicine |
| Divisions: | Medicine > Abteilung für Pädiatrische Hämatologie, Onkologie und Stammzelltransplantation |
| Depositing User: | Dr. Gernot Deinzer |
| Date Deposited: | 27 Sep 2022 12:50 |
| Last Modified: | 27 Sep 2022 12:50 |
| URI: | https://pred.uni-regensburg.de/id/eprint/48083 |
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