Kreuter, Michael and Herth, Felix J. F. and Wacker, Margarethe and Leidl, Reiner and Hellmann, Andreas and Pfeifer, Michael and Behr, Juergen and Witt, Sabine and Kauschka, Dagmar and Mall, Marcus and Guenther, Andreas and Markart, Philipp (2015) Exploring Clinical and Epidemiological Characteristics of Interstitial Lung Diseases: Rationale, Aims, and Design of a Nationwide Prospective Registry-The EXCITING-ILD Registry. BIOMED RESEARCH INTERNATIONAL: 123876. ISSN 2314-6133, 2314-6141
Full text not available from this repository. (Request a copy)Abstract
Despite a number of prospective registries conducted in past years, the current epidemiology of interstitial lung diseases (ILD) is still not well defined, particularly regarding the prevalence and incidence, their management, healthcare utilisation needs, and healthcare-associated costs. To address these issues in Germany, a new prospective ILD registry, "Exploring Clinical and Epidemiological Characteristics of Interstitial Lung Diseases" (EXCITING-ILD), is being conducted by the German Centre for Lung Research in association with ambulatory, inpatient, scientific pulmonology organisations and patient support groups. This multicentre, noninterventional, prospective, and observational ILD registry aims to collect comprehensive and validated data from all healthcare institutions on the incidence, prevalence, characteristics, management, and outcomes regarding all ILD presentations in the real-world setting. Specifically, this registry will collect demographic data, disease-related data such as ILD subtype, treatments, diagnostic procedures (e.g., HRCT, surgical lung biopsy), risk factors (e.g., familial ILD), significant comorbidities, ILD managements, and disease outcomes as well as healthcare resource consumption. The EXCITING-ILD registry will include in-patient and out-patient ILD healthcare facilities in more than 100 sites. In summary, this registry will document comprehensive and current epidemiological data as well as important health economic data for ILDs in Germany.
| Item Type: | Article |
|---|---|
| Uncontrolled Keywords: | IDIOPATHIC PULMONARY-FIBROSIS; MANAGEMENT; FLANDERS; EFFICACY; SAFETY; SPAIN; |
| Subjects: | 600 Technology > 610 Medical sciences Medicine |
| Divisions: | Medicine > Lehrstuhl für Innere Medizin II |
| Depositing User: | Dr. Gernot Deinzer |
| Date Deposited: | 26 Jul 2019 10:00 |
| Last Modified: | 26 Jul 2019 10:00 |
| URI: | https://pred.uni-regensburg.de/id/eprint/6157 |
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